Summer brings sunshine, vacations, family barbecues, and more opportunities to enjoy the outdoors. But for many people living with chronic illnesses—and the parents and caregivers supporting them—the warmer months can also present unique challenges.
Certain medications can make your skin more sensitive to the sun. Some chronic conditions make it harder for the body to regulate temperature. Medical devices, surgical scars, and healing skin may require extra protection from harmful UV rays.
The good news? With a little planning, you can safely enjoy everything summer has to offer while protecting your health.
Why Sun Safety Matters Even More with Chronic Illness
Everyone should practice sun safety, but it's especially important if you live with conditions such as:
- Lupus
- Multiple Sclerosis (MS)
- Rheumatoid Arthritis
- Psoriasis
- Inflammatory Bowel Disease (IBD)
- Cancer during or after treatment
- Diabetes
- POTS and Dysautonomia
- Organ transplant recipients
- Many autoimmune diseases
Some medications—including antibiotics, certain blood pressure medications, chemotherapy, acne medications, and immunosuppressants—can also increase your skin's sensitivity to sunlight.
According to the American Academy of Dermatology (AAD), UV exposure can lead to painful sunburns, premature aging, and increase the risk of skin cancer. For people managing chronic illness, it can also contribute to fatigue, dehydration, or symptom flare-ups.
Know Your UV Risk
One of the easiest ways to protect yourself is by checking the daily UV Index before heading outdoors.
The Environmental Protection Agency (EPA) and the National Weather Service provide daily UV forecasts to help you plan outdoor activities.
When the UV Index is high, consider:
- Spending more time in the shade
- Wearing protective clothing
- Applying sunscreen frequently
- Scheduling outdoor activities earlier or later in the day
Little changes can make a big difference.
Dress for Sun Protection
Your clothing is one of your best defenses against UV exposure.
Choose lightweight, breathable, long-sleeve clothing whenever possible.
Many adaptive clothing options provide excellent coverage while making dressing easier for people living with chronic illness or disability.
At Spoonie Threads, several products help combine comfort with thoughtful design:
- Long-sleeve adaptive tops for breathable arm coverage
- Hoodies for lightweight layering
- Adaptive pants for comfortable outdoor activities
- Support Sleeves with SPF 40 UV protection, providing an extra layer of sun protection while also offering gentle compression and support for everyday activities
Adaptive clothing isn't just about accessibility—it's also about helping you stay comfortable wherever life takes you.
Don't Forget Sunscreen
The Skin Cancer Foundation recommends using a broad-spectrum sunscreen with SPF 30 or higher.
Remember to apply sunscreen to areas people often miss:
- Ears
- Back of the neck
- Hands
- Feet
- Around medical devices when appropriate (avoid placing sunscreen directly on open wounds or healing incisions)
Reapply every two hours—or more often if swimming or sweating.
Stay Cool Before You Feel Hot
Many chronic illnesses make it harder to regulate body temperature.
Rather than waiting until you feel overheated, plan ahead.
Helpful ideas include:
- Carry a refillable water bottle.
- Wear breathable fabrics.
- Take frequent breaks indoors.
- Use cooling towels or neck wraps.
- Choose shaded walking paths.
- Pack a portable fan.
If you're attending outdoor events, identify air-conditioned spaces ahead of time where you can cool down if needed.
Hydration Is More Important Than You Think
Dehydration happens quickly during summer.
For people living with conditions like POTS, kidney disease, diabetes, or during cancer treatment, staying hydrated can be especially important.
Bring water wherever you go.
If your healthcare provider recommends electrolyte drinks, keep those on hand as well.
Eating water-rich foods like watermelon, cucumbers, strawberries, oranges, and grapes can also help boost hydration.
Protect Medical Devices
Summer activities can create additional challenges for medical devices.
If you use:
- Insulin pumps
- Continuous glucose monitors (CGMs)
- Feeding tubes
- Ostomy supplies
- Ports
- Catheters
Protect them from prolonged heat and direct sunlight whenever possible.
Keep extra supplies in insulated bags if needed, and avoid leaving medications or devices in hot vehicles.
Many manufacturers provide specific temperature recommendations for medical equipment.
Plan Outdoor Activities Wisely
You don't have to avoid the outdoors—you simply need a plan.
Try scheduling activities:
- Before 10 a.m.
- After 4 p.m.
- On shaded trails
- At indoor attractions during peak afternoon heat
Summer memories don't require spending all day in direct sunlight.
Caregiver Corner
Whether you're caring for a child with complex medical needs or supporting an aging parent, summer planning helps everyone feel more comfortable.
Consider creating a "summer essentials bag" that includes:
- Sunscreen
- Hats
- Water bottles
- Cooling towels
- Extra medical supplies
- Snacks
- Lightweight adaptive clothing
- SPF support sleeves
Having everything together makes spontaneous outings much easier.
Listen to Your Body
Perhaps the most important tip is this:
It's okay to leave early.
It's okay to take a break.
It's okay to change your plans.
Living well with a chronic illness means learning to work with your body instead of pushing through symptoms.
Summer should be enjoyable—not exhausting.
Frequently Asked Questions
Can certain chronic illnesses make you more sensitive to the sun?
Yes. Conditions like lupus, MS, autoimmune diseases, and some cancer treatments can increase sensitivity to heat and UV exposure. Always discuss your specific condition with your healthcare provider.
Do medications affect sun sensitivity?
Many do. Ask your pharmacist or healthcare provider whether any of your medications increase photosensitivity.
Are long sleeves too hot during summer?
Not necessarily. Lightweight, moisture-wicking long sleeves can actually help keep you cooler while protecting your skin from direct sunlight.
Can adaptive clothing help in the summer?
Absolutely. Adaptive clothing offers comfort, easy access for medical devices, and breathable coverage. Products like Spoonie Threads' adaptive tops and SPF 40 Support Sleeves provide additional sun protection while helping you stay comfortable outdoors.
Helpful Resources
American Academy of Dermatology – Sun Safety
https://www.aad.org/public/everyday-care/sun-protection
Skin Cancer Foundation
https://www.skincancer.org
Environmental Protection Agency UV Index
https://www.epa.gov/sunsafety
Centers for Disease Control and Prevention – Heat & Health
https://www.cdc.gov/heat-health
Final Thoughts
Sunshine should be something you enjoy—not something you fear. With smart planning, breathable adaptive clothing, plenty of hydration, and thoughtful sun protection, you can safely make the most of summer while caring for yourself or a loved one.
At Spoonie Threads, we believe adaptive clothing should help you embrace every season with confidence, comfort, and independence.
