Resources

Blood Disorders Cancer

Developmental Disabilities

Digestive Disorders

Heart Disorders

Respiratory Disorders

100 Best Disability Blogs and Websites

Feedspot

Blood Disorders

Hemophilia

About

Hemophilia is a rare disorder in which your blood doesn't clot normally because it lacks sufficient blood-clotting proteins (clotting factors).

Hematology.org

Organizations

Hemophilia.org

World Federation of Hemophilia

Blogs & Community

Adventures of a Hemophiliac

Voices of Hemophilia

2 Brothers with Hemophilia

10 Spoonie Self-Care Tips

Lyme Disease

About

Lyme disease is caused by the bacterium Borrelia burgdorferi and rarely, Borrelia mayonii. It is transmitted to humans through the bite of infected blacklegged ticks.

Hematology.org

Lyme Disease Association

Organizations

Texas Lyme Disease Association

International Lyme and Associated Diseases Association

American Lyme Disease Foundation

Globally Me Alliance

Blogs & Community

LymeDisease.org

10 Spoonie Self-Care Tips

Sickle Cell Anemia

About

Sickle cell anemia is an inherited red blood cell disorder in which there aren't enough healthy red blood cells to carry oxygen throughout your body; the red blood cells are shaped like sickles or crescent moons.

Sicklecelldisease.org

Hematology.org

Mayo Clinic

Organizations

ASCAA

Sickle Cell Society

Blogs & Community

Sickle Cell Warriors

Sickle Cell Blog

10 Spoonie Self-Care Tips

Cancer

Breast Cancer

About

Breast cancer is a type of cancer that begins in the cells of the breast.

cancer.gov

cancer.org

Organizations

Komen

bcrf.org

National Breast Cancer

Pink Fund

Blogs & Community

Stupid Dumb Breast Cancer

But Doctor I Hate Pink

Colon/Rectal Cancer

About

Colon cancer is a type of cancer that begins in the colon or rectum, located at the digestive tract's lower end.

cancer.org

cancer.gov

Organizations

CC Alliance

Fight Colorectal Cancer

Colon Cancer Coalition

Blogs & Community

Fight Colorectal Cancer - Community

Esophageal Cancer

About

Esophageal cancer is a type of cancer that begins in the esophagus, the tube that runs from the throat to the stomach.

cancer.org

Organizations

SALGI

Blogs & Community

MD Anderson Patient Blog

Leukemia/Lymphoma

About

Leukemia and lymphoma are both forms of blood cancer. Leukemia affects the blood and bone marrow, while lymphomas mainly affect the lymph nodes.

cancer.org

All Blood Cancers

Organizations

Leukemia & Lymphoma Society

Leukemia Research Foundation

Blogs & Community

Teen Cancer Blog

Tips for Parents

10 Spoonie Self-Care Tips

Lung Cancer

About

Lung cancer is a type of cancer that begins in the cells of the lungs.

cancer.org

Organizations

Lung Cancer Alliance

Lungevity

lung.org

Blogs & Community

Gray Connections

Outliving Lung Cancer

10 Spoonie Self-Care Tips

What You Need to Know About Lung Cancer

Prostate Cancer

About

Prostate cancer is a type of cancer that begins in the cells of the prostate.

cancer.org

Organizations

pcf.org

zerocancer.org

Blogs & Community

Male Care

Todd Seals

Developmental Disabilities


Extra Lucky Moms

"Dear Mama is a collection of letters written by moms representing many types of disabilities, as well as a self-advocate herself. With all of the overwhelming information you get when you receive a diagnosis, we wanted a mom picking up this book to look at this cover, feel peaceful, and know that it was safe for her heart to read it."

Order the book here.

ADHD

About

ADHD is a disorder including attention difficulty, hyperactivity, and impulsiveness.

Additude Mag

Mayo Clinic

Organizations

CHADD

ADHD Foundation

add.org

Blogs & Community

Additude Mag Blog

Fat Brain Toys

Architectural Digest | How to Design an ADHD-Friendly Home

Autism Spectrum Disorder

About

Autism spectrum disorder (ASD) is a developmental disorder that affects communication and behavior.

National Institute for Health

Mayo Clinic

Organizations

Autistic Self Advocacy Network

Autistic Women & Nonbinary Network

Autism Support Network

myasdf.org

National Autism Resources

The Wallet Card® Project – Helping People with Disabilities Communicate with First Responders

Blogs & Community

The Autism Cafe

Autism Mommy Therapist

grasp.org/blog

An Autism Observer

Michelle Sutton Writes

Cerebral Palsy

About

Cerebral palsy (CP) is a group of disorders that affect a person's ability to move and maintain balance and posture.

Mayo Clinic

cereberalpalsy.org

Organizations

yourcpf.org

Disability Visibility Project

Blogs & Community

Love that Max

If at birth you don't succeed

Down Syndrome

About

Down syndrome is a genetic disorder caused when abnormal cell division results in extra genetic material from chromosome 21.

Organizations

National Down Syndrome Society

Canadian Down Syndrome Society

Blogs & Community

Noah's Dad

Hopeful Parents

Extra Lucky Mom's Hospital Stay Checklist

Epilepsy

About

A disorder in which nerve cell activity in the brain is disturbed, causing seizures.

epilepsy.com

Organizations

American Epilepsy Society

epilepsy.com

Blogs & Community

Living Well with Epilepsy

Becoming a mum with epilepsy

10 Spoonie Self-Care Tips

Sensory Processing Disorder

About

Sensory processing disorder (SPD) is a condition that affects how the brain processes sensory stimuli. Sensory information includes things you see, hear, smell, taste, or touch.

SPD Star

Child Mind

Organizations

STAR Institute

SPD Network

Blogs & Community

Lemon Lime Adventures

Spina Bifida

About

Spina bifida is a congenital disability that occurs when the spine and spinal cord don't form properly.

Spina Bifida Association

Columbia Spine

Organizations

Spina Bifida Association

Blogs & Community

Living with Spina Bifida

The Notable Woman

KeepItPushing.org

Digestive Disorders

Colon/Rectal Cancer

About

Colon cancer is a type of cancer that begins in the colon or rectum, located at the digestive tract's lower end.

cancer.org

cancer.gov

Organizations

CC Alliance

Fight Colorectal Cancer

Colon Cancer Coalition

Blogs & Community

Fight Colorectal Cancer - Community

Crohn's Disease, Colitis, & Ostomies


About

Crohn's Disease is a chronic inflammatory bowel disease (IBD) that affects the lining of the digestive tract. Ulcerative colitis is an inflammatory bowel disease that causes inflammation and ulcers in your digestive tract. An ostomy is surgery to create an opening from an area inside the body to the outside in order to treat certain diseases of the digestive or urinary systems.

Crohns and Colitis

Mayo Clinic Crohns

New Ostomy Patient Guide


Blogs & Community

Austin Ostomy

United Ostomy Associations of America

CrohnsandColitis.org

Crohns & Colitis Foundation

Crohns and Me

Stolen Colon

Uncover Ostomy

Crohnsdisease.com

Gutless and Glamorous

The Vegan Ostomy

10 Spoonie Self-Care Tips

Support Groups

Support Groups affiliated with the UOAA

Diverticulitis

About

Diverticulitis is the infection or inflammation of diverticula, pouches that can form in your intestines.

Foundation for Gastrointestinal Disorders

American Society of Colo-Rectal Surgeons

Organizations

World Gastroenterology Organisation

Gastrointestinal Society

National Institute of Diabetes and Digestive and Kidney Diseases

Feeding Tubes

About

WebMD Feeding Tubes

Living With Tube Feeding

Organizations

TubeFed.com

Feeding Tube Awareness

Oley Foundation

Inside Out Care

Swallowing Disorder Foundation

Feeding.com

FeedingMatters.com

FirstStagesFeeding.com

Pediatric Feeding Association

Blogs & Community

Tube Fed

G-Tube Babies Facebook Group

Adult Tube Feeding Facebook Group

She Got Guts Blog

The Tube Fed Wife

Singing Through the Rain

10 Spoonie Self-Care Tips

Heart Disorders

Congenital Heart Defects

About

heart.org

National Institute for Health

Organizations

Pediatric Congenital Heart Association

The Children's Heart Foundation

Blogs & Community

Conquering CHD

Heart Baby Scarlett

Kawasaki Disease

About

Kawasaki disease is an illness that causes inflammation in blood vessels throughout the body.

Mayo Clinic

Healthy Children

Organizations

KD Foundation

Kawasaki Kids Foundation

Blogs & Community

Isaiah's KD Journey

Kawasaki Disease

Postural Orthostatic Tachycardia Syndrome (POTS)

About

POTS is the name for a group of symptoms related to the reduced blood volume that occurs when standing up.

Dysautonomia International

myheart.net

Organizations

Dysautonomia International

Blogs & Community

With a Side of Salt

Living with Bob

Lethargic Smiles

Life with POTS

Respiratory Disorder

Cystic Fibrosis

About

Cystic fibrosis is a hereditary disease that damages the lungs and digestive system.

About Cystic Fibrosis

Mayo Clinic

Lung.org

Organizations

Cystic Fibrosis Foundation

Blogs & Community

One Breath

Gunnar Esiason

Cystic Fibrosis Foundation Blog

Esophageal Cancer

About

Esophageal cancer is a type of cancer that begins in the esophagus, the tube that runs from the throat to the stomach.

cancer.org

Organizations

SALGI

Blogs & Community

MD Anderson Patient Blog

Laryngectomy

About

Laryngectomy is the removal of the larynx and separation of the airway from the mouth, nose and esophagus, entirely or in part.

University of Illinois Health

Organizations

International Association of Laryngectomees

Blogs & Community

Spirotect

dribrook.blogspot.com

Diabetes

Blogs & Community

Beyond Type 1

Dialysis

Websites

Cleaveland Clinic

General

About



Blogs & Community

Annie Louise Foundation - Hospital Support

The Connected Parent